Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Wednesday, September 9, 2009

Chest Pain - New Problems - September 9th, 2009

Well I spent another evening in the ER on Labor day. My chest was killing me. It still is actually. Tons of pressure right in the center of my chest. They did the EKG and some blood work. All looked good so they doped me up and sent me home to get an echo on Tuesday. Had the echocardiogram and it looked good as well. They told me it must be some type of inflammation in the chest and gave me motrin and some pain killers until the inflammation goes down. Today my legs feel like they want to constantly cramp and I am noticing some swelling in them this evening. I don't know what's going on, but it is very annoying. Any thoughts out there???

Sunday, August 2, 2009

Yaz Birth Control Neurological Side Effects

So today I was doing some research and I am wondering, could this possibly be a side effect of Yaz? I took Yaz from September 08 to April of 09 and my symptoms began in January of 09. I know for a fact my heart palpitations were a side effect since they went away about 2 weeks after I stopped taking Yaz. Has anyone out there ever heard of pelvic numbness being a side effect of Yaz and lasting as long as this has since I stopped taking it??????



Monday, July 27, 2009

July 27th, 2009 - My Anniversary Today and Bike Ride Last Night

Today is my 13th wedding anniversary to my wonderful husband. We aren't going out anywhere fancy, just spending a day at home with the fam relaxing. We went on a bike ride last night for the first time in quite a while. Wow is all I can say. I had a hard time getting out of bed before 10 today. I can't believe how much it took out of me. I really enjoyed it (although my butt is now sore) and it was nice to spend some quality time with the kids. Thankfully I have today off so I can recover!!!

Saturday, July 25, 2009

Swollen and Sore Tongue


I didn't think about mentioning my tongue. Around the 4th of July I thought I burnt my tongue although I could not remember and instance it would have happened, but after 3 weeks it still hurts and I cannot eat anything spicy or salty. Here is a photo of my tongue. See how the sides are indented from my teeth and although it's not a great pic, the front and sides are red, not like the rest of my tongue. It also is affecting my speech. I keep slurring words every now and then. Very frusterating. Maybe another clue to all this? Looking online it talks about hypothyroidism and I have other symptoms of that as well. I may go see a doc this week and bring it up as an option to see what they say....

Friday, July 24, 2009

Today is a good day...

Okay, besides the fact that last night my left pinky kept falling asleep last night, I am actually feeling productive today. I also talked to my mom and she talked to her doctor about the whole endometriosis thing, but her doctor felt as well that my issue is neurological and not endometriosis. So we are back to having no clues.

Tuesday, July 21, 2009

Feeling Cruddy....What about Endometriosis?

Side note for today: Going to bed at 3am is not a good idea when you have to get up at 7. Anyways, I just found out this weekend after my mother had a hysterectomy for fybroid tumors that she also had endometriosis really bad. Then I found out my cousin and aunt both have had it as well!! I am going to call my OB this week and find out if I could possibly have endometriosis as well. I have never heard of anyone going numb from it, but it is too coinsidental. I also have been having more pain in my pelvic region this past week. Maybe I am mentally causing the pain thinking of endometriosis? I don't know. It just is odd. Something to investigate!

Monday, July 13, 2009

July 11th, 2009 - Weird water dripping sensation...Low body temperature and hot flashes??

Okay so I am 33 years old, definatly not going into menopause (at least I shouldn't be), off all birth control for 3 months now since my hubby had the big V and I feel like I am getting hot flashes. I was at a friend's house and I got very flushed, felt like I was getting a fever. We checked my temp, it was 97.6. My temp is always 98.6. At all my doc appointments it's been 98.6. I thought this was weird. Also I was holding her 5 month old baby and I thought he peed through his diaper on my fingers. I had him in my lap and I felt water dripping down my fingers on my left hand. But when we looked, nothing was there. I'm starting to get weirded out again. I bought a thermometer last night and I am consistently between 97.4 - 97.7. I have been trying my hardest to ignore everything my body is doing, but now my body temp has dropped a whole degree.

I'm still extremely fatigued all the time, still numb (oh yeah and now I am beginning to dribble pee a little) and I'm getting new pains and crazy sensations. What is going on????? I'm starting to think I need to head off to another doctor soon, but what type of doctor do I go see? Who do I trust?? I am very confused and just wish the answer would fall in my lap!

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