Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Tuesday, July 21, 2009

Feeling Cruddy....What about Endometriosis?

Side note for today: Going to bed at 3am is not a good idea when you have to get up at 7. Anyways, I just found out this weekend after my mother had a hysterectomy for fybroid tumors that she also had endometriosis really bad. Then I found out my cousin and aunt both have had it as well!! I am going to call my OB this week and find out if I could possibly have endometriosis as well. I have never heard of anyone going numb from it, but it is too coinsidental. I also have been having more pain in my pelvic region this past week. Maybe I am mentally causing the pain thinking of endometriosis? I don't know. It just is odd. Something to investigate!

Monday, July 13, 2009

July 11th, 2009 - Weird water dripping sensation...Low body temperature and hot flashes??

Okay so I am 33 years old, definatly not going into menopause (at least I shouldn't be), off all birth control for 3 months now since my hubby had the big V and I feel like I am getting hot flashes. I was at a friend's house and I got very flushed, felt like I was getting a fever. We checked my temp, it was 97.6. My temp is always 98.6. At all my doc appointments it's been 98.6. I thought this was weird. Also I was holding her 5 month old baby and I thought he peed through his diaper on my fingers. I had him in my lap and I felt water dripping down my fingers on my left hand. But when we looked, nothing was there. I'm starting to get weirded out again. I bought a thermometer last night and I am consistently between 97.4 - 97.7. I have been trying my hardest to ignore everything my body is doing, but now my body temp has dropped a whole degree.

I'm still extremely fatigued all the time, still numb (oh yeah and now I am beginning to dribble pee a little) and I'm getting new pains and crazy sensations. What is going on????? I'm starting to think I need to head off to another doctor soon, but what type of doctor do I go see? Who do I trust?? I am very confused and just wish the answer would fall in my lap!

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Monday, June 8, 2009

June 8th, 2009 - On Vacation


Having a nice vacation in Los Angelas. Exhausted beyond normal, but trying to recoop from the bronchitis still so I am sure that's causing the problems. Arms have really been driving me nuts. They are just constantly having some type of neuro feeling. I can't explain what it feels like, sometimes it's slightly painful, most of the time its just an annoying feeling.

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Monday, June 1, 2009

June 1st, 2009 - Sick Again with Chest Cold - Bronchitis


Getting ready to go out of town and now I get bronchitis. Came on fast and hard. The doc gave me some antibiotics to knock it out quick. Hope they work, I don't want my vacation to be ruined because of this! Numbness and arms all the same. No new changes.

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Monday, May 25, 2009

May 25th, 2009 - Memorial Day Weekend

Got out of town this weekend. It was nice to get my mind off of myself. Went to an RV campground with the whole family and had a good time. I was laying on the deck on our cabin for about 20 minutes on my back and my right arm went completely numb. After about 20 minutes it woke back up and all was normal. This is the first time this has happened without me being in bed, but I was laying on my back. Am i pinching a nerve when I lay down?

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Friday, April 24, 2009

April 24th, 2009 - Getting On With Life...


Well I am living life like the doctor told me to. Working out as I can and trying not to let the numbness get to me. My arms are starting to bother me. Both of them on and off, they just feel weak at times although I have full strength in them. They also fall asleep on me at night time alot now.

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Friday, April 10, 2009

April 10th, 2009 - Back to Neuro for Follow-up and EMG


Symptoms have remained the same, nothing new except for fatigue driving me insane. The shocking pains have not returned. Seems those only lasted for that one day. Thanks God!

Neuro does the EMG of my arms and legs. They cannot test the abdomen, it is not possible so they are hoping the arms and legs will give them clues. I am scared to death of the pain involved. For the most part it wasn't too bad. The one in my calf was the worst. They only test the right side of my body.

After the exam was done he brought me into the regular exam room to go over all the results. Everything is 100% normal. UGH!!! I break down. This was the last thing I wanted to hear. How can I be feeling this way yet everything is coming back normal???

Neuro tells me at this point there is nothing they can do for me and to get out there and live me life. If things get worse we'll have to go back through all the testing again and hopefully something will show up. I am completely crushed and leave the doctor's very depressed. He was the one who was supposed to give me answers and make everything go back to normal. Now what do I do????

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,