Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Friday, April 24, 2009

April 24th, 2009 - Getting On With Life...


Well I am living life like the doctor told me to. Working out as I can and trying not to let the numbness get to me. My arms are starting to bother me. Both of them on and off, they just feel weak at times although I have full strength in them. They also fall asleep on me at night time alot now.

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Friday, April 10, 2009

April 10th, 2009 - Back to Neuro for Follow-up and EMG


Symptoms have remained the same, nothing new except for fatigue driving me insane. The shocking pains have not returned. Seems those only lasted for that one day. Thanks God!

Neuro does the EMG of my arms and legs. They cannot test the abdomen, it is not possible so they are hoping the arms and legs will give them clues. I am scared to death of the pain involved. For the most part it wasn't too bad. The one in my calf was the worst. They only test the right side of my body.

After the exam was done he brought me into the regular exam room to go over all the results. Everything is 100% normal. UGH!!! I break down. This was the last thing I wanted to hear. How can I be feeling this way yet everything is coming back normal???

Neuro tells me at this point there is nothing they can do for me and to get out there and live me life. If things get worse we'll have to go back through all the testing again and hopefully something will show up. I am completely crushed and leave the doctor's very depressed. He was the one who was supposed to give me answers and make everything go back to normal. Now what do I do????

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

Thursday, March 19, 2009

Friday - March 19th, 2009 - First Appointment with New Neurologist


So here we go, my hopes are up today as I go to see the new neurologist. He is VERY thorough. Spent an hour with us going over symptoms, unfortunately the docs here at home didn't send him any of my blood work, so all he has to look at is my scans. He wants to review everything and he also wants the scans of my spine redone again, but in his town, not mine. He also orders more blood work. So off to the waiting game again....

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Sunday, March 8, 2009

Sunday - March 8th, 2009 - Electric shocking Pains....


New pain toady, some electrical shocks shooting down my left hand. Right through my 4th and 5th finger. One time it even went down my back. Never had this before. Doesn't feel good. Hope this doesn't last!

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Monday, March 2, 2009

Monday - March 2nd, 2009 - Follow-up with Internist

Go to see the internist today. MRI shows some spinal narrowing and low water in my lower spine, same 2 bulging disks, but nothing significant to be affecting my problems. Blood work is also completely normal. No vitamin B deficiency or anything of that sort. He mentions is still could be MS and wants me to see another Neuro. This time he sends me to a Neuro out of town with a great reputation. I am hopeful this will be my answer and wait for the referal. Here's my MRI report. Looks like gibberish to me




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Friday, February 27, 2009

Friday - February 27th, 2009 - Can't Walk???

I woke up last night feeling like I was drunk, I was falling all over the hallway trying to go to the bathroom. I crawled back to bed and woke up this morning totally normal. That was weird.

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Monday, February 23, 2009

Monday - February 23rd, 2009 - MRI Today


Spinal MRI Today. Nothing special, just same old same old. I'm beginning to feel like this mystery illness will never get solved.

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