Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Friday, April 24, 2009

April 24th, 2009 - Getting On With Life...


Well I am living life like the doctor told me to. Working out as I can and trying not to let the numbness get to me. My arms are starting to bother me. Both of them on and off, they just feel weak at times although I have full strength in them. They also fall asleep on me at night time alot now.

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

Friday, April 10, 2009

April 10th, 2009 - Back to Neuro for Follow-up and EMG


Symptoms have remained the same, nothing new except for fatigue driving me insane. The shocking pains have not returned. Seems those only lasted for that one day. Thanks God!

Neuro does the EMG of my arms and legs. They cannot test the abdomen, it is not possible so they are hoping the arms and legs will give them clues. I am scared to death of the pain involved. For the most part it wasn't too bad. The one in my calf was the worst. They only test the right side of my body.

After the exam was done he brought me into the regular exam room to go over all the results. Everything is 100% normal. UGH!!! I break down. This was the last thing I wanted to hear. How can I be feeling this way yet everything is coming back normal???

Neuro tells me at this point there is nothing they can do for me and to get out there and live me life. If things get worse we'll have to go back through all the testing again and hopefully something will show up. I am completely crushed and leave the doctor's very depressed. He was the one who was supposed to give me answers and make everything go back to normal. Now what do I do????

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,