Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Friday, February 27, 2009

Friday - February 27th, 2009 - Can't Walk???

I woke up last night feeling like I was drunk, I was falling all over the hallway trying to go to the bathroom. I crawled back to bed and woke up this morning totally normal. That was weird.

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Monday, February 23, 2009

Monday - February 23rd, 2009 - MRI Today


Spinal MRI Today. Nothing special, just same old same old. I'm beginning to feel like this mystery illness will never get solved.

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

Thursday, February 19, 2009

Thursday - February 19th, 2009 - Appointment with Internal Medicine Doctor


He suggests another MRI of my spine since the first one was done without contrast, checks all my vitals, and orders some more blood tests. He is just as puzzled as the other doctors. At this point I am getting used to the disappointment and just follow along with his recommendations.

Wednesday, February 18, 2009

Sunday - February 15th, 2009 - More numbness


You know the feeling when you're sitting too long and your butt falls asleep? Well this is the feeling I woke up to today. My left butt cheek is asleep. My right side has a lot more sensation but is still not normal. Also my rectum inside is numb now. This is making is more difficult to have a bowel movement, I have to keep up the fiber in my diet!

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

Monday, February 9, 2009

Monday - February 9th, 2009 - Back to the Idiot Neuroligist


So I am back for test results today. Neuro quickly glazes over MRI, says brain scan in normal, keep taking meds and he'll see me in 3 months. I tell him the meds are making me sick and I'm not sure they are really the right type of medicine. Also I ask about my blood work. He didn't even look at my chart!!!! I had to tell him he ordered blood work to check for MS. I also tell him I don't want to be drugged all the time, I want to find the cause of the problem since it still seems to be spreading and I am getting worried. He looks at the blood work, all's normal. Writes me up for another prescription medicine and says to come back in 3 months.

I am beyond pissed at this point. This guy just wants to drug people and could care less about figuring out what the root of the problem is. It's time for me to move on to another doctor.

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

Monday, February 2, 2009

Monday - February 2nd, 2009 - So Sick today...


I feel like I am been run over by a truck today. Horrible chest cold and extreme exhaustion. The Neurontin is horrible medicine. It makes me feel drugged all the time and I think it has led to this chest cold. It's not helping at all and after all the internet reading I have done, it seems to be for patient's with pain problems not numbness. I'm going to discuss this with the doc as I HATE this medicine and cannot continue to function properly with it.

mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,