Living with an Undiagnosed Medical Condition

This site is being created from a journal I have been keeping of my Mystery Illness. So far I am undiagnosed. I am doing this in hopes to help others out there through my experiences and possibly find a diagnosis myself. Go back to the archives and start from the beginning to read the whole story. Please feel free to comment and share your stories or advice as you feel led!

Monday, March 2, 2009

Monday - March 2nd, 2009 - Follow-up with Internist

Go to see the internist today. MRI shows some spinal narrowing and low water in my lower spine, same 2 bulging disks, but nothing significant to be affecting my problems. Blood work is also completely normal. No vitamin B deficiency or anything of that sort. He mentions is still could be MS and wants me to see another Neuro. This time he sends me to a Neuro out of town with a great reputation. I am hopeful this will be my answer and wait for the referal. Here's my MRI report. Looks like gibberish to me




mystery diagnosis, mystery illness, neuro problems, numbness, unknown medical problems, pelvic problems, numb arms, ms, sick, pelvic disease, pelvic numbness,

1 comment:

  1. Wendy,

    I stumbled onto your blog. It is obviously quite dated and I don't know if you stopped posting because you got well or because you gave up and have continued to be unhealthy. I am writing because in 2013 I had a a somewhat similar experience and went undiagnosed for 10 months until I finally tested positive for Lyme disease. I had already been tested 3 times during that period before finally getting a positive test because I found what is called a Lyme Literate MD in my area who ordered the right test from the right lab. 8 months later and I am close to 100% back to normal. If you haven't been tested or if you have been by anyone other than an LLMD, you should do a search for "Lyme Literate MD" in your area and see them. Your symptoms and experience sound awfully compelling. You might also want to peruse the web site for the International Lyme and Associated Diseases Society (ILADS.ORG) where you will find information including a symptom checklist, and watch the documentary "Under Our Skin." It was this checklist and documentary that convinced me I had Lyme before I even had the positive blood test (finally). I was right. Good luck.

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